Showing posts with label Stage 3 Colon Cancer. Show all posts
Showing posts with label Stage 3 Colon Cancer. Show all posts

Wednesday, November 16, 2022

Stepping it up in the world

 This post may contain affiliate links. Read my disclosure policy here



Shopping for exercise equipment can be really hard when you are trying to stay within a budget, making sure it will fit in your home, will be low impact, can be moved or stored easily, as well as finding something that fits your weight range. I have fought with weight since I was 11 years old and became very ill. At my highest weight, I was 460 something pounds and at my lowest when I met my husband I was 190 pounds. Last year I was diagnosed with Stage 3 Colon Cancer and had several surgeries, and chemotherapy treatments after having gotten more ill over the past few years to the point that I was sleeping pretty much the whole day away. 

I am now done with treatments, my first set of tests as well as scans have come back and I am getting stronger every day. Instead of using a wheelchair pretty much all of the time I am now using my rollator much more often. I had a physical therapist for a while after each operation and then again after everything because I have Neuropathy (for me that is nonstop pins and needles in both my hands, feet, and legs). I am considered a high risk to fall so I have to be really careful. Between the Neuropathy and other health issues, I have to stick to a low-impact exercise routine. 

I have exercises I do most days for my legs, I added in arm, shoulder, and neck exercises as well once my abdomen was healed. Being in bed I wanted to make sure my muscles did not atrophy, so I have been doing bed exercises since day 2 after the first operation. Most days I am still upset with where I am but if I honestly look back I am in much better shape than I was at the beginning, so I am moving forward. 

I have been wanting to add an elliptical to my routine but sticking to an exercise routine has always been really hard for me. I found that most ellipticals would take up way too much real estate in my home.  Then I found out about desk exercise equipment and my choices greatly expanded. The Cubii is what I decided on. To be honest I have been looking at this particular under-dek elliptical for a while and had it on my wishlist. I was recently contacted by a company to give it a whirl and I almost literally jumped at the chance since it was on the top of my desk exercise equipment list. 

The only pieces of exercise equipment that we had before were a set of aerobic steps (which I can't use presently), one-pound weights, exercise bands (which have gone missing), an exercise ball, a pilates ring, and a recumbent exercise bike which I have yet to get back on to. I have added a Summers Gym MagicFITNATION Rock N Fit, and now an under-desk elliptical. 

When you get to the Cubii Site you can take a Quiz to see which Cubii is right for you. My Quiz results said that the Cubii Go would be best for me. The Cubii Go has a retractable handle so you can move it and store it easily. Our couches are raised because we are tall so we keep the Cubii right under our couch so it is easy to pull out and use. For me, if it is easy to move and store I am more apt to use it and keep using it. There are blue tooth models but mine is not so I have to manually add my workouts into the app which is free with your Cubii. 



This is how your box will come so if it is a gift make sure you are able to get it wrapped or put it away for later gift-giving. I am very happy with the way it was shipped and packed.



When you take all of the pieces out of the box this is what you should have. Instructions were clear to understand and made it super easy to assemble the Cubii Go. It took under 5 minutes total to put together although my husband said it was more like 2 minutes. It took me longer to download the app and set my profile up than it did to unbox and put the Cubii Go together. The app is included with the purchase. 







Once I was set up with my profile I noticed they have a Gratitude is the Attitude November Wellness Journi which I joined right away. Today's challenge was pretty easy. I had to use the Cubii for 20 minutes while reading, watching, or listening to something informative. After 20 minutes I added in my time and my first workout was logged in graph form and I got an achievement. Tomorrow's challenge is to drink 80oz of water. I am always struggling with getting enough water in. With challenges, I am more apt to keep doing things because it is more like a game. 



Before getting this I was a little skeptical about the foot surface size but as you can see in my picture at the top of this post, there is plenty of room for your feet both bare or with shoes on. I wear a size 9.5 women's USA and there is plenty of room for a much larger foot to fit onto it comfortably.




If you are in your office and are using this under-desk elliptical you can stick your chair wheel into this pull-out slot which is also the expandable handle so that you aren't rolling backward while trying to those steps in for the day. 








Cubii even has free classes that will step up your workout routine. I will be trying these in the next few days. I am so excited to find something that is so easy to use and fits into our home as well as something I can use that my body is actually capable of doing. I love that the Cubii Go comes with a retractable handle and wheels for easy portability, an easy-to-read digital display, and 8 resistance settings. At the Cubii website, you can even order other accessories like weights, mats, foot straps, etc. If you are interested you can get 30.00 off your first order here.

Our family can use this under-desk elliptical at a desk, on the couch, on the edge of a bed, or even on the porch while enjoying nice weather outside. I am so excited to start this new journey with Cubii and my readers. Here is to stepping up in the world. 

Monday, October 24, 2022

Homeschooling for the second year

 



We aren't new to homeschooling (we homeschooled my nephew who we have had since he was a baby) and wish we really did it with our first child and continued with all of them. With that being said on July 27,2021 we made the decision to homeschool our youngest child. Between Covid -19, remote learning, and the public school system doing a great disservice in teaching my children (at least the last two) we felt we needed to take the reigns so our youngest child would be better prepared for what the future may hold for her.

Little did we know I would find out that soon after that I had cancer and then find out it was Stage 3 Colon Cancer. My immune system was horrible, to begin with, Chemotherapy didn't make it any better so it was the right move at the right time. Even though last year threw us curve balls we made it through, seeing our child start to blossom, and finding out what she really enjoyed and what she hated in school was worth it. 

We are of course better prepared than we were last year and so far the school year is going well. 

Saturday, October 22, 2022

Where I am today

 I thought I would update everyone on how everything is going. One thing I want to reflect on is my fight for disability. I was told when I was 11 years old that I should never work. Did I listen? No, I held down several jobs on farms, babysitting, and working in mom & pop stores as a teenager. Once I was married I worked in a grocery store, mom & pop store, ran my own child care for many years, worked with mentally and physically handicapped children and adults, worked for a movie theater, and did several freelance jobs. 

 When I was pregnant with our 6th biological child my Dr. made me promise once I had her I would not work anymore. I still tried to do freelance jobs which only caused me to get more sick until I just couldn't even do those anymore. 

 As you can see I have tried to make something of my blog but to be honest I don't make very much not enough to pay the bills but enough to get gifts for my family, but that isn't from what I write. That comes from doing surveys which takes time and you don't get rich from that, at least I haven't found a way to. 

 Then I do product reviews which is fun. I get to try out lots of products and introduce my family, friends, and readers to what is available and how I like it. Along with that, I am able to do giveaways for some of the companies as well as work with a whole assortment of bloggers in helping them with their giveaways. Again no payment just free items but it keeps me busy and I can work it around my being ill so often. 

 So back to my disability fight. It took me getting cancer for them to finally put it through. I am considered disabled for the rest of my life. We thought it would be the answer to our financial needs, and I would feel like I was contributing to our family's income. Sadly I was a wee bit short of the points to get SSI on my own. I know I may mess up the different programs up so I apologize, they are confusing enough. So they tried getting me money from another source and they say my husband already brings home too much in his own disability so I am not eligible. I am also not eligible for Medicare so I have to keep applying for Medicaid. 

 It certainly was not the answer we wanted, but it is what it is and has changed our future plans quite a bit, but we are going with it as the path we are supposed to be on and will keep plugging along. The worse part is my lawyer worked for over 7 years on my case and doesn't understand it all either. These are the only cases she does and has never seen one turn out like mine. She was only to get paid if I got money and I didn't so she literally spent years on my case for nothing in return. 

 I had planned to go see the Ocean which I have never seen when I made it through my treatments. We planned to make a big trip next Spring, but I don't think it will happen quite like we wanted it to. We wanted to stop at different places along the way to visit friends, family, and destinations. I know I'll make it to the ocean someday even if that is my children putting my ashes in the Ocean after I am gone. 

Today I awoke so my time here is not done. Thank you to those who stayed long enough to read and hope you will come back again. Hugs. 

Thursday, October 13, 2022

Getting through the hard days

  I am a believer in Jesus and know not everyone's path is smooth. I have felt his presence every day. Even on the hardest days, it was him that got me through. Not that my family hasn't helped because they have and even friends helped out a few times bringing things we really needed to be able to get through this. I have several dear friends and family who checked in with me often, calling, sending texts, words of encouragement, things to make me laugh, and most of all praying for me. 

 My husband would just seem to know when I needed him most because I would be really upset or not feeling well. I sleep in the living room on an XL Twin adjustable bed while he sleeps in our room on our old bed. We hope to purchase the other half of my bed so that we can put them together in our room so we can sleep by one another again. Anyways I didn't always want to bother everyone when I was like that since they all did pretty much everything for me during my waking hours. He would just appear, pull over a chair and sit with me until I fell asleep. He even said he would often come out just to make sure I was still breathing.

 He prayed for me, played games with me, cried with me, and made me laugh when I needed it most. Oh don't get me wrong there were days he was so tired even with the help of the kids that he just needed a break, not as many as he would have liked to have I am sure, but when he was able to get a break it seemed like for a while after he would have the strength to get me through some more days. 

 There were nights I told my husband and God that if I died that night I would be OK. I am ready to go home, but sure enough, I would wake up the next day and know that God wasn't done with me yet. I wish I knew what my purpose was but most people never know and it isn't seen or realized until after they are gone. Miracles can be like that too. 

 I have been blessed in my lifetime to have seen many miracles. Some may never get the chance or shall I say open their eyes enough to see them happen. I wish believing in God was easy for everyone. I know there are those who may read this and not have a relationship with God or even believe in him, but that is your choice this is mine and I am not pushing it on you, just relating to how I have gotten through my life. Take what you will but don't be mean just out of spite. Everyone's path is different. You are on yours I am on mine. I wish well to all those who read my blog and hope this will touch everyone in some way. Until another day. Hugs. 


Scan and Test results.

 I haven't really written about my health issues since it all began but will be backtracking and adding in posts and hope to be able to have them in some kind of order if you would like to go back and read from the beginning. If the latter is true then just keep your eyes open for that post. 

 When this all began I wanted to keep an online journal here on my blog but things went so quickly even though at the time it didn't seem quick at all. I thought so many things would happen or I would have time for this or that but to my surprise, it didn't go quite like I would have liked it to. 

 For anyone just hoping on this rollercoaster, I call my life, Welcome, grab something to drink maybe even a snack. My name is Pamela, I have been married to my husband for 32 years and dating him for 33 years. We have 6 children. My son is 31, my daughter Samantha is 28, Bryan is 25, Nesie is 25, Deanna is 19, and Dorothy is 14. We also have 4 grandchildren 2 grandsons and 2 granddaughters. 

 I was adopted by my paternal Uncle and his wife. They are who I take about whenever I write about my parents if I talk about my biological then that will be the term I use while talking about them. My parents received me when I was two weeks old. 

 I hadn't been feeling well for quite some time (although to be honest I have been getting sick from the very day I was born). I kept losing strength and sleep was taking up most of my days and nights leaving me feeling even more tired. I knew something was wrong and when I found out I had diverticulitis we thought that was the answer but during a colonoscopy to check on my diverticulitis and at the time seeking a surgeon to remove my sigmoid from my colon they found a mass which they cut and removed which showed Cancer. 

 They were pretty sure they had it all and that I was at most stage 1 Colon Cancer but once they were able to do the Cancer Removal Surgery my results came back Stage 3 Colon Cancer. It had spread to my lymph nodes. As I said I am working on getting my notes from the last year or so together and adding them here so we are now going to take a big jump to now. 

 I finished my chemotherapy on July 21st. I had a few appointments after that date that will be added as I go along but we are going to keep our attention on my first set of scans and tests since then. 

 I had my colonoscopy in mid-September 2022. I have hemorrhoids, and my diverticulitis is still there, but where they did my surgery has healed well, and looks beautiful they said. My mammogram came back clean, but I am still waiting on the ultrasound they took of my ovaries. No news is good news, right? I see that Dr. later this month.

 I had my cat scans last Thursday. My Oncologists office called today to go over them with me. There is something on my thyroid (I already have hypothyroidism, and growth in the same area but not attached to the thyroid) that I didn't get the name of but will be confirming what action is needed next with my Primary Doctor who was given a copy of the scans. Called today but he had already left for the day so hope to hear from him by tomorrow. My oncologist is monitoring a few nodules on or in my lungs. Do forgive me I will update you when I know which it is. Instead of having a clear scan and being able to go another 6 months till my next scan I will be getting more scans in three months to check on my lungs.

 I had hoped to give everyone the all-clear for the next 6 months but it just isn't the case. I guess once you get Cancer you are always waiting for it to strike again. I didn't worry about it till I had it and now I can't shake the feeling of dread every time there is a test no matter how positive I try to be. I have a hard time sleeping and want to spend as much time with my family as I can. There is just never enough time to do it all. 




Tuesday, August 17, 2021

Home resting

 I am home in a bit of discomfort but resting. God moved in the situation. Thankfully the Dr. who was there was able to finish if he hadn’t been there they wouldn’t have been able to. He is the one called when something like what was in me is found. They didn’t see it on the scans. I have special surgical clips working with my bleeding medication to keep me from bleeding while I heal.

This is not over yet they sent my biopsies and removals to pathology stat to have them tested. I have damage both in my esophagus and colon as well as what they call a torturous sigmoid. The biggest removal was precancerous 100% but it could also be cancerous that is why they have the stat testing on it.

in there he had to cut and resection different parts of me together. I see the other surgeon on Friday, the gastroenterologist in two weeks and have to go through this all again in 3 months depending on the pathology report. Keep me and my family in prayers please.

Monday, August 16, 2021

All ready for my procedures

 I wanted to be more clear about my operation/procedures tomorrow. I am having a colonoscopy and endoscopy. They want to rule out cancer, as well as check things to make sure they have a clear picture to know just how much of my colon will need to be removed. I see a Surgeon on Friday to talk about my Sigmoid removal to hopefully get rid of the diverticulitis. This is something they found back when they did my emergency appendectomy back in 2018, it has just taken time, compounded diagnosis, and then finally infection on top of infection to get the doctors all on the same page. It has just become dangerous to my life for this to continue so it is time to take care of things. Please keep me in your thoughts as you go about your day tomorrow.

Friday, July 9, 2021

My first Telehealth call

 Just had my telehealth call with my Hematologist and I will be going for more tests next week and a possible iron infusion based on those test results. She gave me a rundown of what I will be given for my operations and that there will be an extra med on board to help me, as well as making sure they have enough of my blood on hand. In our family, my 4th biological child is the only one who can give me blood as she hasn't tested positive for any of my blood diseases and has the same blood type as me, so we always have her on call when I need to go to the hospital just in case. We have other children with the same blood type as me but can't give blood or donate organs because of our blood disorders. Those who don't have my blood disorders all give blood as often as they can, I just can't have their blood. Getting closer to having my procedures done so we can find out what needs to come out so I don't have all of these infections from diverticulitis.