Showing posts with label Colon Cancer. Show all posts
Showing posts with label Colon Cancer. Show all posts

Sunday, January 2, 2022

Holiday Excitement

 We had a pretty good Christmas even with stress, illness, and a tree that wouldn't light this year. Our tree that my youngest daughter and oldest granddaughter put up and decorated needed help that was not available this year from the angel who has seen better days that we let go of when they took down the tree to the lights that no longer worked which caused us to toss the tree altogether. We plan on buying a new tree, ornaments, and angel for 2022. 

From all of the stress of the girls, my stomach started acting up and nothing was moving, causing me a lot of pain. Once the stress was removed my body started working and I was on the mend. We had Christmas Eve with my Son's family and boy do I love seeing the boys enjoy their presents. It brings me so much joy to be able to see them and spend time with them. 

Christmas was spent with all of the girls which was great and stressful all at the same time. My oldest daughter is just struggling and the fight is up in your face real, too much for me in my current condition to even get my mind around. I have placed her in God's hands as I need to heal so I can be there for everyone. 

Like I said before my husband only half guessed his pistachios but never guessed his larger presents which he loves by the way. The girls made out like bandits as usual. I got a three their fruit bowl that didn't make our last move, some really nice warm mittens, gloves, and hats, a whole case of chocolate Candy that used to be sold here in America but no longer is that my husband had delivered from England, I got a new Quill pen, wax, and a monogrammed wax stamper and all different kinds of colored wax to seal my letters with, a massager, nail files, and a piece of art with all of our children's names on it. I think there might have been something else but not sure. 

On the 28th I had my appointment with my Primary Care Physician and it was mainly a catch-up visit and setting up my next visit. It went well. I am down 36 lbs from my pre-op weight. I have a phobia of eating so we are keeping a close eye on that to make sure it doesn't get out of hand but this last week I have finished my plate twice which has made my husband happy. 

Our home has come to getting excited if I make a bowel movement and if  I eat. It's like a party up in here at any given time. Whoot Whoot. There are plenty of sad times but we like to focus on the good times as much as possible. 

I had someone cause some undue stress the night before my operation but it has been worked out. I don't think I will ever understand why people do things to hurt others. 

On the 30th I had my surgery to get more port placed. It went well. I was awake the whole time talking with the Dr. and Nurses, although I did sleep well when I finally got home. On the way home, since we know my chemotherapy treatments will cause neuropathy I had a Dairy Queen Banana Split and I enjoyed each and every bite savoring it for all, it's worth as it may be a long time before I can enjoy ice cream again. As for my port, it is still tender and still has a few days to heal. 

Later on the 30th we would find out that two of the people who were helping my daughter move her stuff into storage came back positive for Covid-19. We still rang in the New Year but I have to call my Dr.'s first thing Monday to see how they want to proceed with my care this week. I am thinking they might hold back my chemotherapy a week to see what my daughter's test says. Sadly there are no rapid tests open so we have to wait for the longer test to come back which seems to take forever. So far I still have the dry cough I have since my surgery in November and nothing else so we are taking that as a good sign. 

We are still taking one day at a time and enjoying the time we have together. Holidays can be stressful but please always try to find the happy moments. I know that is what gets me through. Here is to a New Start to a New Year for everyone!



Tuesday, December 21, 2021

Emotional Overload

 Today we had an education day about my Chemotherapy. It went well, we toured the chemotherapy room, and got acquainted with the nurses. I also met with billing and everything is a go from my insurance, at least for now. I also got the date for the operation to get my port put in which is December 30th. 

Before we even left this morning I had a surprise. My daughter Nesie picked up my daughter Samantha and Lilly so they would be here for Christmas. Hugging Samantha is what I needed to get my day started and then I saw her face. Her teeth are in really bad shape. She 27 and there is nothing left to them. How does that even happen? I know her life choices and the fact that she battles with anorexia and bulimia is a big part of it but it was still a shock. I told her she needs to find a surgeon and get all of her teeth pulled and get dentures. To see my baby in pain because of her teeth is heart-wrenching. 

Then we had Nesie she is a mess. She had a breakup and my granddaughter and she both have to be out of the house by December 31st with nowhere to go, and with me being sick. Nesie has had a lot on her plate. Nesie has a lot of decisions to make in a short time and it is putting a toll on her boy and mind. I can suggest things and listen to her but I can't make her decisions for her. Lets just say she isn't having it easy right now. 

Being a mother seeing your children in pain or turmoil is hard to see when you aren't able to fix it for them. Like I said on my Facebook. " I liked it better when they were all really little and we had all the answers for them. A kiss, a hug, or time just with them is all they needed to make things better." It's hard, please remember people who look fine may be going through rough times or have to make a tough decision, be kind.

We had lots of tears on the way up and on the way back from the Clinic. Big note make sure you have tissues on hand in the car for these very moments. We did finish the night off by ordering Chinese for Dinner. Everyone ate together talking and I think the night ended well for everyone before the girls were off till Christmas Day.

Monday, December 20, 2021

Where I am right now

 So I know it has been some time since I have written, but life just flies right by in the blink of an eye. These days even more so. Our family is looking forward to the Holidays. This year my husband and I bought presents for each other which doesn't happen very often. We have been married 31 years and maybe only a handful of times have we bought gifts for each other. It has always been about the kids and family. This year has thrown us a curveball and we took a stand just buying for our children, grandchildren, pets, and for each other.

 I did however not let my husband buy anything for me until I made it through my operation. I made it and he started ordering right away. There is one present, the big one he said but the last time he updated me it was still on the other side of the planet. Time will tell if it makes it here on time. His however have all made it and are wrapped and ready. He is super excited to guess what his presents are and he is dead on good doing it. This year I don't think he will guess. He guessed his large presents were toolboxes. Sorry honey but you're dead wrong. I know he will guess some of the smaller gifts by feel but the larger ones no way not in a million years. 

 I will update everyone more about my health but wanted to try and write a little something each day so that there is a kind of diary for others who may be going through what I am going through or if I pass for my family to look back on. I love them so. I have a great medical team, a supportive family, supportive friends, and many new friends to make along my journey. When I am feeling alone and at my lowest, I feel God's presence and he comforts me. He often sends my husband to me, puts a song into my head,  someone calls,  or messages me. Jesus is awesome and never leaves my side. Thank you to all those who pray for me, message me, or call me. You are all wonderful. Hugs. 

Monday, September 20, 2021

Health Update

 Between homeschooling, family day, Narnia Night, and having my granddaughter over for the weekend, we have been super busy. Also, we were hit with a lot of information and are still sorting things out. First of all, when they find cancer they like to come up with a plan within the first 30 days. Because of my other health issues, it will take a bit more time to sort out.

I have to get my Gynecologist to contact my Surgeon to see what his plan for the growth on my ovaries will be. When and if they cut me they want it to be once. My biopsies have been sent to a second pathologist for more testing. Also, I have to have more tests to make sure my cancer has not spread. They don't want to do anything with my diverticulitis right now unless it is an emergency and I was told I could eat anything as the seeds, nuts, etc are only a myth (so many Dr.'s and patients disagree with this).

We talked about weight loss surgery but we have kept food diaries in the past and I eat less than most people so my weight gain doesn't match my intake, so maybe more movement is needed which has gotten seriously less over the last 13 years due to pain from my fibromyalgia, back, and of course more weight gain from not moving as much. There just isn't an easy answer to all of this. To be quite honest it seems like we don't have all of the information we need yet. So until the Dr.'s talk, the results from the pathology come back, and I get more testing we are at a standstill.

I am sorry I don't have any better news, my health issues just make it extremely hard for the Dr.'s to come up with a plan to treat or medicate me. I hope to have more of an update in the coming weeks. I am scared, this isn't easy on me or my family. We are just praying and taking one day at a time, enjoying the time we have together, and finding joy in each day, until we can take the next step. Thank you to everyone who keeps asking how we are doing and for updates. Keep the prayers coming. Hugs.

Friday, August 20, 2021

5:16

The call wasn't really that long and I am not quite sure when it started but once I heard it my eyes went right to the clock on my phone like I could freeze time in place. See I have been sick lately although, I guess you can say I have been sick all of my life with one thing or another.

I had a double precedure on 8/17/2021  that was more then what they had expected to find. They removed pieces and resected me, then sent the pieces off to be tested. 

I was thinking I wouldn't hear anything till I saw the Surgeon. on Friday but Thursday night at around five in the evening the call came in. It was the Dr. I know a Dr. doesn't call unless it is something, not that late, good news can always wait. I have had these calls before up to 10:30 pm. 

This time it would be the word I thought I would never hear. The C word, The Big C,  CANCER, they found cancer and they aren't sure they got it all because they had to cut it out of me in little pieces. 

The first thing we did was call our children and branch out from there. Today after two more calls I will be posting on my social media. There are just too many people to contact with the news. Social Media is quicker besides telling everyone the same thing over and over just tires me out more then I already am. 

Of course almost everyone so far is asking how I am taking it, how is my husband, the kids. Well I don't know we are still processing it. My husband went to bed early, me I can't sleep, the kids are being supportive. 

People ask what the next steps are. Well the Surgeon tomorrow and then a call to oncology for an appointment to see just what those next steps will be. Of course I have to call my Primary Doctor as well as my Genecologist. You see they found a growth on my left ovary right before Covid-19 changed up everything, that they have veen watching. It is right next to where they found the cancer in my colon so everyone needs to be on board for this.

I suppose I am writing here for myself more then for my readers but hey who knows, something I might say might save someone's life. 

Some people asked did I know or think something was up. When has something not been up with my health? The answer is yes. Even when I am not having Diverticulitis pain I feel something in my stomach which is actually my intestines. It feels like something is eating me alive, gnawing at my insides. It took awhile of it happening to say anything to my husband, he even ordered a pregnancy test hoping I was just pregnant. When it came back negative that is when he started to really worry.

Then in June I had blood tests. I saw the results. It showed my bone marrow had kicked in and my red and white cell counts were all in the wrong places. I am not dumb. I was just hoping it was the infections I kept getting over and over and that the numbers would get better. So did I have an idea I sure did.

My appointments were already set so things couldn't go any quicker. I was supposed to have my precedure back in 2018, but between Dr.'s retiring, cases being shifted, busy schedules with kids and then Covid-19 we kept putting things off, there always tomorrow (Isn't that what we tell ourselves?). Last year things began to get worse with infection after infection which is what put my precedure further out finally after  being infection free for 8 weeks I had my predcedures. So here I am.