The mirage of an Oasis

 

Finally, they are letting me have clear liquids. Apple juice, water, and ginger ale.

Update: Shortly after they gave me liquids they took them back away someone made a mistake. So I am back to no solids or liquids only iv fluids, antibiotics, and the small sips of water to take any of the pill forms of medications that I am on. I can’t even chew gum because it stimulates my belly and colon. My mouth and throat are so dry.

At least I have lip balm to keep my lips moist. I had a very uncomfortable night but did get a few hours of sleep. The team and my Drs checked on me this morning they want the antibiotics to get a good hold before reintroducing liquids or solids so not sure how long this stay will be. Thank you to everyone for the calls, texts, comments, and prayers. They mean so much. Hugs

They are keeping me in the hospital

 Update, they are keeping me, I have another infection (diverticulitis), another mass that wasn’t picked up during my colonoscopy in August in my sigmoid. They have to move my cancer removal (right side) operation further out to let me heal unless there is an emergency. I have had two different cat scans, a leg ultrasound, blood, and urine taken. Had new specialists, teams of specialists, surgical teams, and most of my Drs checking in on me, either by phone or actually visiting, even those who don’t practice here. I feel I am in good hands and blessed. The road isn’t always easy but glad to be taking this journey with Jesus by my side.

Sent to the ER

     I wasn't feeling well when I saw the Gastroenterologist last Tuesday, they were hoping it was just the new foods introduced causing my colon to work harder but it has gotten progressively worse even with going back to a low residue diet, so they want me to go to the ER at Albany Medical Center just in case. My daughter is on her way to take me.

    While I am waiting for my daughter to pick me up to go to the Er. I thought I would update the plan. Like I said I saw my Gastroentrolgist last Tuesday and that visit went ok, it was just talking about our next steps with them, our next appointment, what to do if I get sick, and setting up an appointment for Dennis to be seen next time we go in. Just so you know the age is 45 now not 50 to get a colonoscopy.         

Wednesday the surgeon's office called to set up testing to see just where the cancer is and if it has spread. Thursday my surgeon called to let us know that the second pathologist confirmed that it is Cancer and wanted to set up my operation date for early October.

    His plan is to use the robot to do my operation if applicable, which is also depending on if the Gynocologist wants my ovaries removed, or if I have a bleed or any other complications, I might lose my colon and end up with a bag, then he would have to do a larger incision. I also have to go for an ultrasound of my legs to check for any blood clots before the surgery as well as having a covid test.

    As of right now I also have to go into the hospital 2 days prior to the operation so that they can start my IV for my bleeding disorder. They are going on at least a nine-day stay with no complications. Of course, right now with me not feeling well I might just be in there until I heal after the big operation so I, Dennis, or my daughter Nesie will be updating everyone as much as they can when I am unable to. I am taking my phone, tablet, and charging cords so I can update as much as I can. Keep the prayers coming. Hugs.

Health Update

 Between homeschooling, family day, Narnia Night, and having my granddaughter over for the weekend, we have been super busy. Also, we were hit with a lot of information and are still sorting things out. First of all, when they find cancer they like to come up with a plan within the first 30 days. Because of my other health issues, it will take a bit more time to sort out.

I have to get my Gynecologist to contact my Surgeon to see what his plan for the growth on my ovaries will be. When and if they cut me they want it to be once. My biopsies have been sent to a second pathologist for more testing. Also, I have to have more tests to make sure my cancer has not spread. They don't want to do anything with my diverticulitis right now unless it is an emergency and I was told I could eat anything as the seeds, nuts, etc are only a myth (so many Dr.'s and patients disagree with this).

We talked about weight loss surgery but we have kept food diaries in the past and I eat less than most people so my weight gain doesn't match my intake, so maybe more movement is needed which has gotten seriously less over the last 13 years due to pain from my fibromyalgia, back, and of course more weight gain from not moving as much. There just isn't an easy answer to all of this. To be quite honest it seems like we don't have all of the information we need yet. So until the Dr.'s talk, the results from the pathology come back, and I get more testing we are at a standstill.

I am sorry I don't have any better news, my health issues just make it extremely hard for the Dr.'s to come up with a plan to treat or medicate me. I hope to have more of an update in the coming weeks. I am scared, this isn't easy on me or my family. We are just praying and taking one day at a time, enjoying the time we have together, and finding joy in each day, until we can take the next step. Thank you to everyone who keeps asking how we are doing and for updates. Keep the prayers coming. Hugs.

At a standstill

    Between homeschooling, family day, Narnia Night, and having my granddaughter over for the weekend, we have been super busy. Also, we were hit with a lot of information and are still sorting things out.

    First of all, when they find cancer they like to come up with a plan within the first 30 days. Because of my other health issues, it will take a bit more time to sort out. I have to get my Gynecologist to contact my Surgeon to see what his plan for the growth on my ovaries will be.

    When and if they cut me they want it to be once. My biopsies have been sent to a second pathologist for more testing. Also, I have to have more tests to make sure my cancer has not spread. They don't want to do anything with my diverticulitis right now unless it is an emergency and I was told I could eat anything as the seeds, nuts, etc are only a myth (so many doctors and patients disagree with this).

    We talked about weight loss surgery but we have kept food diaries in the past and I eat less than most people so my weight gain doesn't match my intake, so maybe more movement is needed which has gotten seriously less over the last 13 years due to pain from my fibromyalgia, back, and of course more weight gain from not moving as much. There just isn't an easy answer to all of this.

    To be quite honest it seems like we don't have all of the information we need yet. So until the doctor's talk, the results from the pathology come back, and I get more testing we are at a standstill. I am sorry I don't have any better news, my health issues just make it extremely hard for the doctors to come up with a plan to treat or medicate me.

    I hope to have more of an update in the coming weeks. I am scared, this isn't easy on me or my family. We are just praying and taking one day at a time, enjoying the time we have together, and finding joy in each day, until we can take the next step. Thank you to everyone who keeps asking how we are doing and for updates. Keep the prayers coming. Hugs.