They are keeping me in the hospital

 Update, they are keeping me, I have another infection (diverticulitis), another mass that wasn’t picked up during my colonoscopy in August in my sigmoid. They have to move my cancer removal (right side) operation further out to let me heal unless there is an emergency. I have had two different cat scans, a leg ultrasound, blood, and urine taken. Had new specialists, teams of specialists, surgical teams, and most of my Drs checking in on me, either by phone or actually visiting, even those who don’t practice here. I feel I am in good hands and blessed. The road isn’t always easy but glad to be taking this journey with Jesus by my side.

Sent to the ER

     I wasn't feeling well when I saw the Gastroenterologist last Tuesday, they were hoping it was just the new foods introduced causing my colon to work harder but it has gotten progressively worse even with going back to a low residue diet, so they want me to go to the ER at Albany Medical Center just in case. My daughter is on her way to take me.

    While I am waiting for my daughter to pick me up to go to the Er. I thought I would update the plan. Like I said I saw my Gastroentrolgist last Tuesday and that visit went ok, it was just talking about our next steps with them, our next appointment, what to do if I get sick, and setting up an appointment for Dennis to be seen next time we go in. Just so you know the age is 45 now not 50 to get a colonoscopy.         

Wednesday the surgeon's office called to set up testing to see just where the cancer is and if it has spread. Thursday my surgeon called to let us know that the second pathologist confirmed that it is Cancer and wanted to set up my operation date for early October.

    His plan is to use the robot to do my operation if applicable, which is also depending on if the Gynocologist wants my ovaries removed, or if I have a bleed or any other complications, I might lose my colon and end up with a bag, then he would have to do a larger incision. I also have to go for an ultrasound of my legs to check for any blood clots before the surgery as well as having a covid test.

    As of right now I also have to go into the hospital 2 days prior to the operation so that they can start my IV for my bleeding disorder. They are going on at least a nine-day stay with no complications. Of course, right now with me not feeling well I might just be in there until I heal after the big operation so I, Dennis, or my daughter Nesie will be updating everyone as much as they can when I am unable to. I am taking my phone, tablet, and charging cords so I can update as much as I can. Keep the prayers coming. Hugs.

Health Update

 Between homeschooling, family day, Narnia Night, and having my granddaughter over for the weekend, we have been super busy. Also, we were hit with a lot of information and are still sorting things out. First of all, when they find cancer they like to come up with a plan within the first 30 days. Because of my other health issues, it will take a bit more time to sort out.

I have to get my Gynecologist to contact my Surgeon to see what his plan for the growth on my ovaries will be. When and if they cut me they want it to be once. My biopsies have been sent to a second pathologist for more testing. Also, I have to have more tests to make sure my cancer has not spread. They don't want to do anything with my diverticulitis right now unless it is an emergency and I was told I could eat anything as the seeds, nuts, etc are only a myth (so many Dr.'s and patients disagree with this).

We talked about weight loss surgery but we have kept food diaries in the past and I eat less than most people so my weight gain doesn't match my intake, so maybe more movement is needed which has gotten seriously less over the last 13 years due to pain from my fibromyalgia, back, and of course more weight gain from not moving as much. There just isn't an easy answer to all of this. To be quite honest it seems like we don't have all of the information we need yet. So until the Dr.'s talk, the results from the pathology come back, and I get more testing we are at a standstill.

I am sorry I don't have any better news, my health issues just make it extremely hard for the Dr.'s to come up with a plan to treat or medicate me. I hope to have more of an update in the coming weeks. I am scared, this isn't easy on me or my family. We are just praying and taking one day at a time, enjoying the time we have together, and finding joy in each day, until we can take the next step. Thank you to everyone who keeps asking how we are doing and for updates. Keep the prayers coming. Hugs.

At a standstill

    Between homeschooling, family day, Narnia Night, and having my granddaughter over for the weekend, we have been super busy. Also, we were hit with a lot of information and are still sorting things out.

    First of all, when they find cancer they like to come up with a plan within the first 30 days. Because of my other health issues, it will take a bit more time to sort out. I have to get my Gynecologist to contact my Surgeon to see what his plan for the growth on my ovaries will be.

    When and if they cut me they want it to be once. My biopsies have been sent to a second pathologist for more testing. Also, I have to have more tests to make sure my cancer has not spread. They don't want to do anything with my diverticulitis right now unless it is an emergency and I was told I could eat anything as the seeds, nuts, etc are only a myth (so many doctors and patients disagree with this).

    We talked about weight loss surgery but we have kept food diaries in the past and I eat less than most people so my weight gain doesn't match my intake, so maybe more movement is needed which has gotten seriously less over the last 13 years due to pain from my fibromyalgia, back, and of course more weight gain from not moving as much. There just isn't an easy answer to all of this.

    To be quite honest it seems like we don't have all of the information we need yet. So until the doctor's talk, the results from the pathology come back, and I get more testing we are at a standstill. I am sorry I don't have any better news, my health issues just make it extremely hard for the doctors to come up with a plan to treat or medicate me.

    I hope to have more of an update in the coming weeks. I am scared, this isn't easy on me or my family. We are just praying and taking one day at a time, enjoying the time we have together, and finding joy in each day, until we can take the next step. Thank you to everyone who keeps asking how we are doing and for updates. Keep the prayers coming. Hugs.

Lots of phone calls

     Today I was able to talk to my gynecologist, hematologist, and my Surgeon. I am set up for the ultrasound on my ovaries where they found a growth last year in July for early September and my appointment for mid-September with my gynecologist.

    They are getting the scans from my Gastroenterologist. My Hematologist is reviewing the paperwork and has set me up with the best Oncologist they have, they will be calling tomorrow with my appointments. My Surgeon had more information but still not all of it, she wants it all from day one but has come up with a plan where I am going to see the Surgeons from Albany Med as they have the resources I will need after the operation no matter what they run into.

    She said I will have 24/7 nurses and doctors on hand until after I am out of the woods. I am just a complicated case they need to pay close attention to. I now know where my cancer is but not how far along I am other than the cancer is still in the wall of my colon so we need to get it out soon. The Cancer is on my right side below my gall bladder. They may have to take my whole large intestine but I will update you as we know more. Thank you to everyone who has been calling, texting, and most importantly praying.

Saw the Surgeon on Friday

     I have been meaning to update everyone it's just been hard. Thursday Night my Dr. called with the biopsy results. I have Cancer in my Colon and they aren't a 100% they got it all. Friday I had my appointment with my Surgeon and that was just a mess. She didn't have any of the information she should have had and the Cancer really changes things up.

    Where she thought we could wait has turned into we have to do this so she needed the updated Scans etc to be able to let me know what their office could do if anything. More or less she said operating on me is very dangerous and it could shorten my lifespan considerably if I were to even make it through. Not what I wanted to hear but will listen to what she has to say on Monday.

Of course, I am going to get a second opinion because I just can't go into an operation with someone who is already doubting what they are capable of. On a good note, I was able to leave a message with my Hematologists office as she is also an Oncologist. They left a message that they will call on Monday as well. Please keep my children, my husband, and myself in your prayers.

5:16 8-19-2021

The call wasn't really that long and I am not quite sure when it started but once I heard it my eyes went right to the clock on my phone like I could freeze time in place. See I have been sick lately although, I guess you can say I have been sick all of my life with one thing or another.

I had a double procedure on 8/17/2021  that was more than what they had expected to find. They removed pieces and resected me, then sent the pieces off to be tested. 

I thought I wouldn't hear anything till I saw the Surgeon. on Friday but Thursday night at around five in the evening the call came in. It was the Dr. I know a Dr. doesn't call unless it is something, but not that late, good news can always wait. I have had these calls before up to 10:30 pm. 

This time it would be the word I thought I would never hear. The C word, The Big C,  CANCER, they found cancer and they aren't sure they got it all because they had to cut it out of me in little pieces. 

The first thing we did was call our children and branch out from there. Today after two more calls I will be posting on my social media. There are just too many people to contact with the news. Social Media is quicker besides telling everyone the same thing over and over just tires me out more than I already am. 

Of course, almost everyone so far is asking how I am taking it, and how is my husband, and the kids. Well, I don't know we are still processing it. My husband went to bed early, I can't sleep, and the kids are being supportive. 

People ask what the next steps are. Well, the Surgeon tomorrow and then a call to oncology for an appointment to see just what those next steps will be. Of course, I have to call my Primary Doctor as well as my Gynecologist. You see they found a growth on my left ovary right before Covid-19 changed up everything, that they had been watching. Since they will be going in for the Cancer they might do that too.

I suppose I am writing here for myself more than for my readers but hey who knows, something I might say might save someone's life. 

Some people asked did I know? or did I think something was up. When has something not been up with my health? The answer is yes. Even when I am not having Diverticulitis pain I feel something in my stomach which is actually my intestines. It feels like something is eating me alive, gnawing at my insides. It took a while for it happening to say anything to my husband, he even ordered a pregnancy test hoping I was just pregnant. When it came back negative that is when he started to really worry.

Then in June, I had blood tests. I saw the results. It showed my bone marrow had kicked in and my red and white cell counts were all in the wrong places. I am not dumb. I was just hoping it was the infections I kept getting over and over and that the numbers would get better. So did I have an idea I sure did.

My appointments were already set so things couldn't go any quicker. I was supposed to have my procedure back in 2018, but between Dr.'s retiring, cases being shifted, busy schedules with kids, and then Covid-19 we kept putting things off, there is always tomorrow (Isn't that what we tell ourselves?). Last year things began to get worse with infection after infection which is what put my procedures further out finally after being infection free for 8 weeks I had my procedures. So here I am. 

How I am feeling and a few funnies

     My throat is feeling better today, but just in case I am only eating a soft food diet for a few days to give those metal tabs in my esophagus and colon a bit more time to heal before hitting it with the hard food.

    I thought someone might want to hear about the funny things I remember saying while they were doing my surgery. " You Guys are Awesome" "Excuse Me" (I must have burped or let some gas out) "Look at all of the pretty shapes" (I must have woken up a bit and saw the screens) " That is trippy" (All I remember is swirling colors like tye dye) "Weee" (I think this is when they spun me around to do my other procedure)

Home resting

 I am home in a bit of discomfort but resting. God moved in the situation. Thankfully the Dr. who was there was able to finish if he hadn’t been there they wouldn’t have been able to. He is the one called when something like what was in me is found. They didn’t see it on the scans. I have special surgical clips working with my bleeding medication to keep me from bleeding while I heal.

This is not over yet they sent my biopsies and removals to pathology stat to have them tested. I have damage in both my esophagus and colon as well as what they call a torturous sigmoid. The biggest removal was precancerous 100% but it could also be cancerous which is why they have the stat testing on it.

While in there the Dr. had to cut and resection different parts of me together. I see the other surgeon on Friday, my gastroenterologist in two weeks, and have to go through this all again in 3 months depending on the pathology report. Keep me and my family in your prayers, please.

All ready for my procedures

 I wanted to be more clear about my operation/procedures tomorrow. I am having a colonoscopy and endoscopy. They want to rule out cancer, as well as check things to make sure they have a clear picture to know just how much of my colon will need to be removed. I see a Surgeon on Friday to talk about my Sigmoid removal to hopefully get rid of the diverticulitis. This is something they found back when they did my emergency appendectomy back in 2018, it has just taken time, compounded diagnosis, and then finally infection on top of infection to get the doctors all on the same page. It has just become dangerous to my life for this to continue so it is time to take care of things. Please keep me in your thoughts as you go about your day tomorrow.

My first Telehealth call

 Just had my telehealth call with my Hematologist and I will be going for more tests next week and a possible iron infusion based on those test results. She gave me a rundown of what I will be given for my operations and that there will be an extra med on board to help me, as well as making sure they have enough of my blood on hand. In our family, my 4th biological child is the only one who can give me blood as she hasn't tested positive for any of my blood diseases and has the same blood type as me, so we always have her on call when I need to go to the hospital just in case. We have other children with the same blood type as me but can't give blood or donate organs because of our blood disorders. Those who don't have my blood disorders all give blood as often as they can, I just can't have their blood. Getting closer to having my procedures done so we can find out what needs to come out so I don't have all of these infections from diverticulitis.

Going Back a bit

I went back before my diagnosis and found an update on my Facebook page for June 22,2021. I am sure there are more but I will go from this date. This was before my cancer diagnosis when we thought it was just plain diverticulitis we were dealing with even though my blood results were saying a bit more. 

 "An update on my health for those interested. I had been having multiple issues since my Emergency Appendectomy/Diverticulitis infection on April 1st, 2018. About a year later they found a growth on my ovaries which has been being monitored, but they would like to remove. Infections in my bowel started slowly and now I am getting them one on top of the other. I just got done with my antibiotics on June 13th, 2021 had my cat scan on June 17th, 2021 there was already an infection again so I am going to be starting Antibiotics again today. Now my operations, endoscopy, colonoscopy, colon removal, and whatever else they decide to take while in there have been moved back because they want me to be infection free for at least 8 weeks. Please pray for these Antibiotics to work and that my body will stay infection free so they can do these operations. I am trying to stay optimistic about everything but I am just plain tired and it is taking its toll on the family as well."