Lots of phone calls

     Today I was able to talk to my gynecologist, hematologist, and my Surgeon. I am set up for the ultrasound on my ovaries where they found a growth last year in July for early September and my appointment for mid-September with my gynecologist.

    They are getting the scans from my Gastroenterologist. My Hematologist is reviewing the paperwork and has set me up with the best Oncologist they have, they will be calling tomorrow with my appointments. My Surgeon had more information but still not all of it, she wants it all from day one but has come up with a plan where I am going to see the Surgeons from Albany Med as they have the resources I will need after the operation no matter what they run into.

    She said I will have 24/7 nurses and doctors on hand until after I am out of the woods. I am just a complicated case they need to pay close attention to. I now know where my cancer is but not how far along I am other than the cancer is still in the wall of my colon so we need to get it out soon. The Cancer is on my right side below my gall bladder. They may have to take my whole large intestine but I will update you as we know more. Thank you to everyone who has been calling, texting, and most importantly praying.

Saw the Surgeon on Friday

     I have been meaning to update everyone it's just been hard. Thursday Night my Dr. called with the biopsy results. I have Cancer in my Colon and they aren't a 100% they got it all. Friday I had my appointment with my Surgeon and that was just a mess. She didn't have any of the information she should have had and the Cancer really changes things up.

    Where she thought we could wait has turned into we have to do this so she needed the updated Scans etc to be able to let me know what their office could do if anything. More or less she said operating on me is very dangerous and it could shorten my lifespan considerably if I were to even make it through. Not what I wanted to hear but will listen to what she has to say on Monday.

Of course, I am going to get a second opinion because I just can't go into an operation with someone who is already doubting what they are capable of. On a good note, I was able to leave a message with my Hematologists office as she is also an Oncologist. They left a message that they will call on Monday as well. Please keep my children, my husband, and myself in your prayers.

5:16 8-19-2021

The call wasn't really that long and I am not quite sure when it started but once I heard it my eyes went right to the clock on my phone like I could freeze time in place. See I have been sick lately although, I guess you can say I have been sick all of my life with one thing or another.

I had a double procedure on 8/17/2021  that was more than what they had expected to find. They removed pieces and resected me, then sent the pieces off to be tested. 

I thought I wouldn't hear anything till I saw the Surgeon. on Friday but Thursday night at around five in the evening the call came in. It was the Dr. I know a Dr. doesn't call unless it is something, but not that late, good news can always wait. I have had these calls before up to 10:30 pm. 

This time it would be the word I thought I would never hear. The C word, The Big C,  CANCER, they found cancer and they aren't sure they got it all because they had to cut it out of me in little pieces. 

The first thing we did was call our children and branch out from there. Today after two more calls I will be posting on my social media. There are just too many people to contact with the news. Social Media is quicker besides telling everyone the same thing over and over just tires me out more than I already am. 

Of course, almost everyone so far is asking how I am taking it, and how is my husband, and the kids. Well, I don't know we are still processing it. My husband went to bed early, I can't sleep, and the kids are being supportive. 

People ask what the next steps are. Well, the Surgeon tomorrow and then a call to oncology for an appointment to see just what those next steps will be. Of course, I have to call my Primary Doctor as well as my Gynecologist. You see they found a growth on my left ovary right before Covid-19 changed up everything, that they had been watching. Since they will be going in for the Cancer they might do that too.

I suppose I am writing here for myself more than for my readers but hey who knows, something I might say might save someone's life. 

Some people asked did I know? or did I think something was up. When has something not been up with my health? The answer is yes. Even when I am not having Diverticulitis pain I feel something in my stomach which is actually my intestines. It feels like something is eating me alive, gnawing at my insides. It took a while for it happening to say anything to my husband, he even ordered a pregnancy test hoping I was just pregnant. When it came back negative that is when he started to really worry.

Then in June, I had blood tests. I saw the results. It showed my bone marrow had kicked in and my red and white cell counts were all in the wrong places. I am not dumb. I was just hoping it was the infections I kept getting over and over and that the numbers would get better. So did I have an idea I sure did.

My appointments were already set so things couldn't go any quicker. I was supposed to have my procedure back in 2018, but between Dr.'s retiring, cases being shifted, busy schedules with kids, and then Covid-19 we kept putting things off, there is always tomorrow (Isn't that what we tell ourselves?). Last year things began to get worse with infection after infection which is what put my procedures further out finally after being infection free for 8 weeks I had my procedures. So here I am. 

How I am feeling and a few funnies

     My throat is feeling better today, but just in case I am only eating a soft food diet for a few days to give those metal tabs in my esophagus and colon a bit more time to heal before hitting it with the hard food.

    I thought someone might want to hear about the funny things I remember saying while they were doing my surgery. " You Guys are Awesome" "Excuse Me" (I must have burped or let some gas out) "Look at all of the pretty shapes" (I must have woken up a bit and saw the screens) " That is trippy" (All I remember is swirling colors like tye dye) "Weee" (I think this is when they spun me around to do my other procedure)

Home resting

 I am home in a bit of discomfort but resting. God moved in the situation. Thankfully the Dr. who was there was able to finish if he hadn’t been there they wouldn’t have been able to. He is the one called when something like what was in me is found. They didn’t see it on the scans. I have special surgical clips working with my bleeding medication to keep me from bleeding while I heal.

This is not over yet they sent my biopsies and removals to pathology stat to have them tested. I have damage in both my esophagus and colon as well as what they call a torturous sigmoid. The biggest removal was precancerous 100% but it could also be cancerous which is why they have the stat testing on it.

While in there the Dr. had to cut and resection different parts of me together. I see the other surgeon on Friday, my gastroenterologist in two weeks, and have to go through this all again in 3 months depending on the pathology report. Keep me and my family in your prayers, please.